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Have your say on your medical data

Posted onPosted on 24th Jun

Sherwood Forest Hospital NHS Foundation Trust is asking the opinion of people across Mansfield, Ashfield and Warsop on how their data is shared and used.

The trust, which runs Newark Hospital, Mansfield Community Hospital and King’s Mill Hospital, Sutton, has adopted a national study called CLIMB, led by the University of Cambridge, to help it better understand opinions on how people’s data is collected and shared.

Healthcare data is sensitive information collected and recorded about your medical background by healthcare professionals within the NHS/HSC. This data can make a simple diagnosis, add to your medical record, prescribe medications and nurse you to better health.

The aim of the CLIMB study is to release an online anonymous survey to seek people’s views on how they think their health data should be shared and used. It will be available to both NHS patients and the public.

Opinions will be sought on patients’ and the public’s current views of health data sharing. This will include if you would want to see your identifiable health data shared and, if so, how.

With whom you would want your data sharing with, whether you would be willing to share your mental and physical health data equally, and whether different thresholds should apply to ‘freetext’ (narrative) versus structured data.

The survey will ask:

• How should your health data be shared?

• Who should share your data?

• What consent should be given?

The survey will take around 15-20 minutes. To access the survey visit www.climbproject.org.uk

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