Posted on 26th Mar
Despite the coronavirus outbreak, 26th March this year is still Purple Day – the international day for raising awareness and funds to help people living with epilepsy.
UK charity Epilepsy Action is reminding people affected by epilepsy that it’s here to help them through the crisis, as well as urging the public to show its support.
The charity has received a sharp spike in helpline calls from people worried about the impact the outbreak is going to have on their health and welfare. The charity has also seen hundreds of messages on social media from people with epilepsy who are anxious about the impact of self-isolation, cancelled medical appointments and possible medicine shortages.
Senior helpline advisor Grace Haydon said: “This is an unprecedented situation and highlights just how much people with epilepsy need vital information, support and reassurance at this worrying time.
“People with epilepsy want to know if they are at increased risk from coronavirus, if illness could make them have more seizures, and how they will get their medicine if they have to self-isolate. We’ve also had callers worried about potential medicine shortages and being able to access routine appointments.
“We are in close contact with the Department of Health and Social Care and are updating our information regularly as the situation changes, as well as finding answers to people’s wide-ranging questions.”
Epilepsy Action is here for anyone affected by epilepsy. People can speak to an expert advisor on the Epilepsy Action Helpline (freephone 0808 800 5050) or find extensive advice and information at epilepsy.org.uk
People can also stay connected and share experiences and questions on the charity’s online forum (forum.epilepsy.org.uk) or through its social media channels on Facebook, Instagram and Twitter.
Epilepsy Action chief executive Philip Lee said: “Every year, Purple Day sees people all over the world share experiences and show we are all united. In these challenging times, it is important as ever that we come together, celebrate and support each other.
“The coronavirus pandemic is extremely concerning and we want to make sure we can continue to be there to support people with epilepsy – now and in the future. Help us to do that by showing your support this Purple Day by doing something purple and learning about epilepsy.
“We’ll be launching a video on the day featuring people with epilepsy sharing powerful experiences about how their lives have changed since being diagnosed. Please watch, share your stories and let’s make this a truly united Purple Day for people with epilepsy.”
This year will see a new approach to Purple Day as people have had to cancel fundraising and awareness events, from purple parties to coffee and chat mornings.
However, Epilepsy Action is urging people to purple up in different ways to support the day, taking part in virtual challenges or gatherings or getting together on social media.
You can also access the latest support and information by visiting epilepsy.org.uk or calling the Epilepsy Action helpline on 0808 800 5050. To support Epilepsy Action’s Purple Day appeal and help people affected by epilepsy, visit epilepsy.org.uk/now
